About a month ago I abandoned my old blog and deleted all but two of the posts. I had had enough of the process, and I found myself worrying about posts I had written, thinking that I should have said something else or I should have made some point more clear. The tone, purpose, and direction of the blog seemed to have escaped from my control, and I needed to escape. Almost immediately, I secured my domain here at WordPress, in case I decided to start the blog anew in fresh surroundings and with little of the baggage of the old blog. The WordPress site has lain fallow for weeks, though, and I was not sure when I would return to writing. Recent events, though, have made me wish that I had a space to relieve my thoughts. It has almost felt as if writing is some sort of waste product–sort of intellectual urine, perhaps–that needed to be voided to make myself more comfortable.
Readers of my old blog may remember that I traveled to Houston back in November to see my dad, who had been diagnosed with a large tumor sitting on his basal ganglia deep in the center of his brain. He had surgery, a long, long procedure, and had moved on to the rehabilitation phase of treatment. Although there were some complications (a blood clot at the venturi drain in the skull, an infection), he responded fairly well to treatment and came through his radiation and first round of chemotherapy with relatively bright prospects. A new MRI revealed that the bits of the tumor left by the resectioning had vanished under the combined chemical and atomic assault. We all cheered upon hearing this news.
But then, for some unfathomable reason, his condition began to deteriorate. He started to lose the neurological gains he had so painfully made in the previous month, and his confusion increased. He became too weak to stand. Doctors thought that the steroids that he was taking to reduce the swelling around the site of the tumor were causing problems, so he began to taper off them. Instead of getting better, though, he got worse.
My step-mom, who was doing virtually all of his in-home care (he was allowed six hours of in-home nurse care every other week by his insurance), was growing frantic, frustrated, and exhausted. He continued to decline, and we decided that this was not what my father wanted: he did not want to live a life that was a life only in the most technical of definitions. Instead of moving on to the third and final stage of chemotherapy of dubious value, my dad would receive palliative care.
That was about two weeks ago. My dad’s condition continued to slide inexorably down, and Julie called me on Saturday with the news that he seemed to be fading quickly. I purchased airline tickets and packed my bags. On Sunday, less than an hour before I was scheduled to drive to the airport, Julie called again with the news that my dad had just died.
I had known since November that the type of tumor my dad had was always fatal. The one-year survival rate is somewhere in the neighborhood of 30%, and there is essentially no long-term survival rate. From this point on, my consciousness was split. One side knew the necessity of planning for death while the other persisted in hope. The hoping side must have prevailed, despite the fact that the other side had logic, medical science, rationalism, and my respect for academic truths behind it. When I heard that my father had died, I realized that the idea of preparing for death is a largely symbolic exercise. You can anticipate it, you can realize it is imminent, you can know it on an intellectual level, but you cannot know it on the visceral level where we–or I, at least–seem really and truly to live.
Before my dad went in for the surgery, Julie and I told him, joshingly, that he had better watch out. We had discussed our plans for him, post-recovery. He was going to go back to school and finally finish his college degree. He was going to come up to spend some time with me in New England. He was going to sit down and do some of that writing that he was always planning. Did we know that we were, almost literally, whistling past the graveyard? I think I did, but again, that realization occupied only half of my consciousness.
I guess the point that I am trying to make is that death is a sneaky thing. It can rush up at full speed, in plain sight, and still be surprising. Trying to understand it is like trying to grab hold of a jet of water: it has a feel, a texture, even a shape, but it resists any attempt to encompass it. And grief, that chief of death’s entourage, is equally sneaky. It hides, waiting for you to turn around, and then it leaps out and enshrouds you in that dark blanket again. Yesterday I caught a glimpse of myself in the mirror out of the corner of my eye, and something–the set of my shoulders, the shape of my head, I don’t know–reminded me so forcefully of my dad. And there it was again–grief laughing like a maniac, ecstatic that it had caught me, again and again.
Your description of grief is so spot-on. When my father died, I was uncertain for months which was the more powerful feeling: the grief that I felt, sometimes in tsunami-sized waves, or the shock of when those waves would hit me, washing the sand out from under my feet. A dozen years later, there is one intersection in town — nothing particular about the corner that I’ve yet to uncover from the recesses of my memory — if I am stopped by the stoplight there , I am vulnerable to being caught by grief. Tempered now, but still surprising. I can steel myself against it for months; just as I think I have it conquered, it swopes in, maniac and ecstatic, just as you have described. Surprised by it as I am, I do not hope that this strange mix of grief and memory goes away, just that I understand more fully the texture and contours of its palpable self.
I’m glad that you’re back Hobgoblin. I’ve missed reading your posts. I only wish that these were less sad times for you. Adore the picture of super-blogger hiking dog, Muttboy. Somewhere in Virginia or N Carolina, I’m guessing?
So sorry to hear about your dad!! I can’t imagine it is any easier to deal with his death even though you knew how ill he was. You have my deepest sympathies!
Very glad to see you back, by the way!
My sympathies on your and your family’s loss. I can relate to what you wrote, because the way I dealt with my mother’s illness and my father’s later illness was completely different. The first was like you described your reaction: planning for a future despite the almost insurmountable odds, because to consider otherwise was just unthinkable.
I’ve been in other, equally traumatic situations, where I soldiered on with my original plans, because, being the stubborn sort, I just couldn’t imagine altering my chosen direction, in spite of almost world-changing circumstances. Looking back on it, it almost seems comical.
I’ll be reading whatever you feel like writing.
Sorry about your dad. You are right about grief, it does sneak up on you, even after time passes and you start to think that you are done with it, something happens and it all comes rushing back again. But eventually there is peace.
Glad you are blogging again.
I am so sorry for your loss. Nice to read you again though. I hope that writing here will give you some comfort instead of worries. Take care!
I’m so sorry. I hope that writing will help you through your grief.
I’m so very sorry to hear about your father, although the way you write so honestly and movingly about your loss seems to tell me how many resources you have to embrace your grief and respect it. I’m so thrilled to have you back blogging again, you have been sorely missed in the time you’ve been away.
First please let me offer you and your step-mother condolences and my heartfelt sympathies. I can empathize with you on all levels – sometimes empathize is just a word – but I have literally walked in your shoes with my father. We had a nurse at night sit with him – he was still independent in his mind but we lived on the farm also not more than a quarter of a mile from the main house. But that night as I lifted him to change his position (I am a six feet but of thin frame) and dad weighed possibly at that time only 75 to 80 pounds) I knew in my heart that he would not last the night but I went home anyway. I did not go to sleep or undress but rocked on the front porch. The call came at 2:16 am from his nurse. Yes, I had rationalized his death but that one call hit me like a full rounded punch from a heavy-weight boxer even though I knew it was coming. My words are at this time only more words but I do care.
Thank you all so much for your kind words and for the welcome for my return to blogging. I have always felt a bit uncomfortable with the “writing as therapy” argument, but it is an unbelievably powerful way to evaluate and understand our emotions, grief especially. And thank you who shared your experiences of loss–it is heartening to see and feel that one is not alone with the deeply personal pain. Cam and Edd–I do completely understand the points you make about grief, and I send my admittedly very belated sympathy back to you.
Cam–NC or Virginia are good guesses, especially since it looks like a bald on top of that mountain, but it’s Bromley Mountain in Vermont. The AT passes through the ski area, and that photo is taken a couple dozen yards away from the top of the ski lift.
Welcome back to Blogland. So glad you’ve come home, even if it’s a new home. Are you back in Connecticut yet? Would love to get together when/if you’re feeling the need, but no pressure. After Bob’s father died, it was quite a while before I felt like socializing. Can’t imagine what it will be like when my own father dies. Know my thoughts are with you, and try not to ever lose that hope. Sometimes it’s the only way to fight logic, and occasionally (I will admit VERY occsionally), it wins.
I am so, so sorry about your father. So sorry. My thoughts are with you and your step-mom.
I am selfishly happy you are back in blogland. I know I use my blog solely to dump out all my “extra” thoughts…thoughts that don’t belong in my essays or fiction or, god forbid, my journalism. With that in mind, it is lucky happenstance I found a community of like-minded people.
Take care of yourself.
Deepest heartfelt sympathy. Welcome back to blogland.
Please accept my condolences. Even if you knew it was going to happen, it must have been very difficult to move on when it did.
I’m glad to see that you are blogging again.
Dear Hobgoblin, I am so sorry. I don’t know the grief of losing a parent, but the thought scares me terribly. You and your family are in my thoughts.
Welcome back to blogging. I was missing your voice and had even considered asking Dorothy if there was any chance you’d blog again. I like your new WordPress look – it’s all clean and bright, and Muttboy looks so damn happy in that picture.
Hello Dear Hob, Even knowing this was on its way, it is still difficult. I don’t think your writing is exactly “writing as therapy” — it’s very moving and powerful and also helpful to other people. We all experience the death of our parents and other loved people, which in no way makes it any easier. I’m so glad, though, that you’ve found a new home for your writing and am thrilled to be able to check in now and see how you are. I hated thinking you were gone for good and am happy that wasn’t so. xo, BL
Thank you so much for this post. When my dad was first diagnosed with prostate cancer, my little brother and I were almost insanely present-directed and optimistic(in part, trying to calm down our mom, who worries for a living)–and we all got lucky, and continue to be, thankfully. So I can totally understand that part of what you were describing. And even though I haven’t experienced what you and your step-mom–and others–have, I was very moved by your writing. My sympathies for your loss. My appreciation for your return to blogging. Welcome back. Hang in there.